Hey,
So I go to the doctor tomorrow to see whats going on with me! lol....I have so many contractions every day but they always seem to stop. I'm glad that they haven't put me into labor but they sure are a pain in the butt! For the past few days I've been having a hard time breathing. That usually only happens when i have contractions but it's been all day. They are going to run some test on me tomorrow to see what that might be. For some reason I think I will have Jackson on July 15Th, but yet I'm thinking if i dnt start feeling better I'll have him by the 4th! I would be ok with a little firecracker. So anyways I'll update everybody after i see the doctor tomorrow..............KEEP THE PRAYERS COMING!
LOTS OF LOVE CANDICE BROOKE
Tuesday, June 30, 2009
Friday, June 26, 2009
ALMOST HERE
Hey,
Well I had a doctors appointment on Thursday and all went pretty well. Rob didn't get to make this appointment, but will be there the next time for sure! Now when i go to the doctor they hook me up to the monitors to see how much the baby is moving and if I'm having contractions. So they put me on the monitors and guess what....i was having contractions! I had no idea. Jackson was moving like crazy and i had been feeling really uncomfortable but hadn't noticed the contractions. I have them everyday so you would think i would know. So since I'm already dilated and was contracting consistently they went ahead and checked me. I was still just a 1. YAY! This means the contractions aren't dilating me. During the sonogram baby Jackson was wide awake again. He was sticking his tongue out alot! He's already alot like his daddy Rob lol....He has some fat cheeks to! I go back to the doctor on Wednesday July 1st. This is the day i get to meet the Studdards! I can't wait. They are a family that i met online that were pregnant with twin girls. One was diagnosed with CDH and the other little baby was just fine. I talk to Stephanie the mom on the phone and by text all the time. Wednesday her girls will be 2 weeks old! Kamryn is the baby girl with CDH and is doing amazing, and Brooke is at home now doing wonderful. So needles to say I'm extremely excited about meeting them. Shawn the dad does a wonderful job of keeping their blog posted! Thanks Shawn! He is also a wonderful daddy taking care of those girls. Well until next time...................
WE STILL NEED ALL THE PRAYERS WE CAN GET! iT'S GETTING SO CLOSE!
Well I had a doctors appointment on Thursday and all went pretty well. Rob didn't get to make this appointment, but will be there the next time for sure! Now when i go to the doctor they hook me up to the monitors to see how much the baby is moving and if I'm having contractions. So they put me on the monitors and guess what....i was having contractions! I had no idea. Jackson was moving like crazy and i had been feeling really uncomfortable but hadn't noticed the contractions. I have them everyday so you would think i would know. So since I'm already dilated and was contracting consistently they went ahead and checked me. I was still just a 1. YAY! This means the contractions aren't dilating me. During the sonogram baby Jackson was wide awake again. He was sticking his tongue out alot! He's already alot like his daddy Rob lol....He has some fat cheeks to! I go back to the doctor on Wednesday July 1st. This is the day i get to meet the Studdards! I can't wait. They are a family that i met online that were pregnant with twin girls. One was diagnosed with CDH and the other little baby was just fine. I talk to Stephanie the mom on the phone and by text all the time. Wednesday her girls will be 2 weeks old! Kamryn is the baby girl with CDH and is doing amazing, and Brooke is at home now doing wonderful. So needles to say I'm extremely excited about meeting them. Shawn the dad does a wonderful job of keeping their blog posted! Thanks Shawn! He is also a wonderful daddy taking care of those girls. Well until next time...................
WE STILL NEED ALL THE PRAYERS WE CAN GET! iT'S GETTING SO CLOSE!
Saturday, June 20, 2009
Fast update
Hello,
Well I haven't posted in a long time so i figured it was time. I have been contracting for a week now and am dilated to a 1. I was so surprised to find out that i was dilated at all... i mean it was six weeks before my real due date. They gave me a shot and my contractions have been controlled for the most part. I'm so big now and i just can't sleep, but Monday I'll have 4 weeks until Jackson gets here, so i guess that's just what comes with it. My doctor was going to keep me in Ft. Worth for the remainder of the time but i looked so good and the contractions aren't dilating me anymore that he let me come home. I just have to take it easy. I go back to the doctor Thursday. We still need all the prayers we can get so please keep praying! I am getting sooooo nervous.
Candice
Well I haven't posted in a long time so i figured it was time. I have been contracting for a week now and am dilated to a 1. I was so surprised to find out that i was dilated at all... i mean it was six weeks before my real due date. They gave me a shot and my contractions have been controlled for the most part. I'm so big now and i just can't sleep, but Monday I'll have 4 weeks until Jackson gets here, so i guess that's just what comes with it. My doctor was going to keep me in Ft. Worth for the remainder of the time but i looked so good and the contractions aren't dilating me anymore that he let me come home. I just have to take it easy. I go back to the doctor Thursday. We still need all the prayers we can get so please keep praying! I am getting sooooo nervous.
Candice
Thursday, June 4, 2009
My doctor appointment (6-4-09)
We went to my doctor today, and everythings just the same. No news at all! I was kind of bummed. I guess it's good that it didn't get worse though. Everything about me looks great and everything about the baby is looking great. Well he still has CDH but he's growing and sucking the heck out of his thumb. We had a 3D sonogram today and the whole time he was sucking his dang thumb. It was really cute. Oh and while he was sucking his thumb his other hand was holding on to the cord! It looked like he was just hanging from a rope with his thumb in his mouth. There was one thing that was different at this appointment, instead of being head down like he has been for 3 months now he's head up rather then at my pelvic area. The doctor says he can still turn but he's really big and I'm not sure about that. Lets pray he does because i don't want a c-section. I will post some sonogram pics as soon as i get to a scanner that works. Thank you everyone for all your prayers. They are very much needed.
We don't have to go back to the doctor for 2 weeks, so that's good for us considering we have to drive almost 3 hours to get there and 3 hours back each time. After this next appointment i go once a week. Monday i will have 6 weeks left! Yay, getting close! We still haven't done the room yet!!!!!!!!!!!!!!!!!!!!!!!!!! Yikes, what are we thinking?????! So much to do!
Lots of love everybody
We don't have to go back to the doctor for 2 weeks, so that's good for us considering we have to drive almost 3 hours to get there and 3 hours back each time. After this next appointment i go once a week. Monday i will have 6 weeks left! Yay, getting close! We still haven't done the room yet!!!!!!!!!!!!!!!!!!!!!!!!!! Yikes, what are we thinking?????! So much to do!
Lots of love everybody
Wednesday, May 27, 2009
To all my friends that want to know.......
So i have had alot of people asking me how long the baby would be in the hospital. Every CDH baby is different so there's really no way of knowing, but the average stay for them is 4 to 6 months. I know that's a very long time! We're praying that our baby Jackson will have a short stay. Our doctors seem to think it wont be 6 months but then they wont confirm anything. They say even if he's doing good that the feeding is a huge obstacle for these babies. So I'm praying he'll do great and wont have to many problems with this. Thanks again for all yall prayers and support.
Candice
Candice
Wednesday, May 20, 2009
GREAT NEWS!
We went to meet the neonatoligist Monday 5/18/09. She was awesome! She was so easy to talk to and just wanted to inform us on everything plus more. She will be the main doctor taking care of our little Jackson while he's in the NICU. Her name is doctor Whitbourn. I'm glad that Rob got to be there with me when i met her because most of these appointments he has to miss due to his work, although he has made all the important ones so far.
Dr. Whitbourn came in with our file and was very excited to read our situation. She had no idea that our CDh baby looked so good. Needles to say she was very surprised to see that the baby just had his stomach up in his chest and that my doctor has already seen the left lung developing since he met me at 20 weeks. She said that was just amazing and very very good news for us. She hasn't had a case like this in a long time. She said there are 3 cdh babies to be born there before i give birth in July, and 3 more after i give birth! I was shocked to find that out. I mean this is kind of a rare condition. Anyways out of all these babies she told us that our baby looks the best and is on the mild in of the spectrum, if there is a mild end. I mean as good as everything looks having a CDH baby is still a very serious and life thring defect.
I know i haven't talked about ECMO on my blog yet but it's a lung heart bypass machine that these babies get put on if the ventilator and everything else that the doctors are trying to do isn't enough for the baby. So ECMO is pretty much life support for these babies. I will write more about ECMO here in a bit. One out of three babies that are put on ECMO come off. This means 1 out of 3 don't survive. Not all the cdh babies get bad enough to be put on ECMO but alot do and thats why it's there. Dr. Whitbourn gave us some great news on this as well. She said by reading our babies case that she is almost positive that our baby will not go on ECMO. YAY! Then she said she wasn't God and things could change but everything looks very positive for us as of right now. I took that very well, just because she is the doctor that takes care of these babies and knows what to expect and i doubt she would tell us such good news when she sees everything she does. She also told us she would pray for us and the baby and i thought that was really neat.
So that's all the news i have for now. We just need to pray really hard that the left lung keeps developing and the stomach is the only thing that stays in the chest. My son Ty was praying for the baby last night and i tried to explain what lungs were and what they did and that we needed to pray for Jackson's left lung to keep on growing. This is what is prayer was " dear God please help my baby Jackson to be healthy and let his left lump grow sooooo big". It was really funny! Until next time.......................................
Candice
Dr. Whitbourn came in with our file and was very excited to read our situation. She had no idea that our CDh baby looked so good. Needles to say she was very surprised to see that the baby just had his stomach up in his chest and that my doctor has already seen the left lung developing since he met me at 20 weeks. She said that was just amazing and very very good news for us. She hasn't had a case like this in a long time. She said there are 3 cdh babies to be born there before i give birth in July, and 3 more after i give birth! I was shocked to find that out. I mean this is kind of a rare condition. Anyways out of all these babies she told us that our baby looks the best and is on the mild in of the spectrum, if there is a mild end. I mean as good as everything looks having a CDH baby is still a very serious and life thring defect.
I know i haven't talked about ECMO on my blog yet but it's a lung heart bypass machine that these babies get put on if the ventilator and everything else that the doctors are trying to do isn't enough for the baby. So ECMO is pretty much life support for these babies. I will write more about ECMO here in a bit. One out of three babies that are put on ECMO come off. This means 1 out of 3 don't survive. Not all the cdh babies get bad enough to be put on ECMO but alot do and thats why it's there. Dr. Whitbourn gave us some great news on this as well. She said by reading our babies case that she is almost positive that our baby will not go on ECMO. YAY! Then she said she wasn't God and things could change but everything looks very positive for us as of right now. I took that very well, just because she is the doctor that takes care of these babies and knows what to expect and i doubt she would tell us such good news when she sees everything she does. She also told us she would pray for us and the baby and i thought that was really neat.
So that's all the news i have for now. We just need to pray really hard that the left lung keeps developing and the stomach is the only thing that stays in the chest. My son Ty was praying for the baby last night and i tried to explain what lungs were and what they did and that we needed to pray for Jackson's left lung to keep on growing. This is what is prayer was " dear God please help my baby Jackson to be healthy and let his left lump grow sooooo big". It was really funny! Until next time.......................................
Candice
Wednesday, May 13, 2009
A LITTLE INFORMATION
Here's a little information for all my family and friends. As everyone knows CDH babies are given a 50% chance of survival after birth, but it's not just that easy. The 50% that do survive have to fight so hard for their lives. It is a huge struggle for these fragile little babies that are trying to survive. We are praying everyday and every night for our little Jackson to survive. We also have to remember that the journey to make it is going to be the hardest thing he will ever have to go through. I've read so much on what these babies have to go through and it is so scary. I can't imagine having to watch my baby fight for every breath, every movement,every single thing that a normal baby can just do without a fight. I Don't know how hard it's going to be watching our baby fighting for his life. The only thing i do know is he can't do it without God. These babies also endure alot of pain. To help them deal with this the doctors have them on high dosages of morphine. Alot of times they just keep them so sedated that they are constantly sleeping. The doctors do this because the little babies are wiggle worms. Lord knows mine is already a wiggle worm.
The remaining 50% that do survive could have to overcome very difficult medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many of these babies have no long-lasting medical problems at all. We pray that the only way you can tell that our little boy was ever born with CDH is the scar from the hernia repair. Every CDH baby is different, there is no way to predict the outcome of any baby. Some babies with no diaphragm and little lung growth have survived, while some babies with full lungs do not. These children are very different, requiring different treatments, and varying amounts of medical support. This is why i still worry so much. Our little Jacksons CDH isn't as bad as alot are and the doctors are so happy with him. I hear all this good news then i go back to the Internet and see that it really doesn't matter, if the child is diagnosed with CDH it is not good.
Thank you everyone for all your prayers and messages. We are anticipating the birth of our child but are so very nervous and have no idea what to expect, even with all the research i do. I'll update everyone after our next appointment on the 18th.
The remaining 50% that do survive could have to overcome very difficult medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many of these babies have no long-lasting medical problems at all. We pray that the only way you can tell that our little boy was ever born with CDH is the scar from the hernia repair. Every CDH baby is different, there is no way to predict the outcome of any baby. Some babies with no diaphragm and little lung growth have survived, while some babies with full lungs do not. These children are very different, requiring different treatments, and varying amounts of medical support. This is why i still worry so much. Our little Jacksons CDH isn't as bad as alot are and the doctors are so happy with him. I hear all this good news then i go back to the Internet and see that it really doesn't matter, if the child is diagnosed with CDH it is not good.
Thank you everyone for all your prayers and messages. We are anticipating the birth of our child but are so very nervous and have no idea what to expect, even with all the research i do. I'll update everyone after our next appointment on the 18th.
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