So i have had alot of people asking me how long the baby would be in the hospital. Every CDH baby is different so there's really no way of knowing, but the average stay for them is 4 to 6 months. I know that's a very long time! We're praying that our baby Jackson will have a short stay. Our doctors seem to think it wont be 6 months but then they wont confirm anything. They say even if he's doing good that the feeding is a huge obstacle for these babies. So I'm praying he'll do great and wont have to many problems with this. Thanks again for all yall prayers and support.
Candice
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Hey guys,
ReplyDeleteI know the uncertainty around the hosptital stay is tough. We are trying to get our hands around it also since we will deliver within the next 3 weeks. Stef and I are just so happy about all the good news you all are getting and hoping that means you will be on the shorter side of the hospital stay!
Just saw your new picture on the blog and love the Dodge symbol! My ram 1500 4x4 is still going strong at 120,000 miles! I need to get a new one soon I think though.
Hang in there guys,
Shawn
Kamryn and Brooke's dad
Hey Candice,
ReplyDeleteI think Stef is going to give you a ring in the next couple of days. It would be great if we could meet up soon. Could you ask Rob to email me if he gets a chance at shawn.studdard@chasepaymentech.com?
Shawn
My son didn't have CDH......He had SEVERE PPHN and RDS and was >>THISCLOSE<< to being put on ECMO.......Thankfully he turned around and got better,.....The HARDEST part and teh part that took the longest before he was discharged was FEEDING.......In fact, he still has a lot of feeding issues till this day.....
ReplyDeleteI have a couple friends with babies who were born with CDH and they survived and are growing, thriving and eating well!!! One just turned 1 and one is 5!!! :0)
You and your family are in my prayers!!!
Alyson
Hi Candice,
ReplyDeleteIt's great to hear everyone's really positive for baby Jackson....so am I. James and Jackson could be friends with Brooke and Kamryn.....how great would that be.
We continue to think and pray for you.
Lots of Love
Beth
Hi Candice and Rob,
ReplyDeleteI just found your blog and wanted to introduce myself. I'm a mom of a CDH survivor, Jaxson. He was born on 5/19/08 and his CDH was on the severe end of the spectrum because all of his stomach, intestines and part of the liver was up.
We were given little hope that he would do well upon arrival. But, Jaxson beat all odds, didn't go up on ECMO, had his repair at day of life 4 and was out of the hospital in 37 days.
I know what you're going through right now and the best advice I can give is to stay positive and healthy.
Sincerely,
Sarah Mayer
http://www.cdhsurvivorjaxson.blogspot.com/