Angel Maxton's blog says that "Some souls are so special, heaven can't wait." I believe that is the case today as we say goodbye to a brave CDH warrior who fought so hard during his short life. Baby Jackson took his last breath today around 1:00pm in Candice's arms. Rob and Candice are shattered right now, living every parents worst nightmare, but were remarkably collected as we spent time with them at the hospital this afternoon. It's not much of a surprise since they have shown unbelievable strength and courage during this long and painful journey. We know there is a reason and a purpose for all of this sadness and pain although we remain frustrated as we can't truly wrap our arms around it. Baby Jackson has touched many lives and taught us what true courage and bravery are all about. He has taught us to appreciate life more while demonstrating just how fragile it really is. We are privileged to have shared in Jackson's story no matter how short the chapter.
Rob and Candice, Stephanie and I are so very sorry for your loss. If there is anything either of you need, you just simply need to say the word. Take care of each other friends and we are here if you need us.
Shawn
Saturday, August 8, 2009
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I am so sorry.
ReplyDeleteCarol G
This isn't what I expected when I came over for another visit to your blog. .......I pray for you guys and sincerely hope that you'll ask your CDH community to help you in any way that we possibly can. Chanda
ReplyDeleteRob and Candice - ya'll are in my prayers.. I pray that God comforts you and be with you during this very difficult time.
ReplyDeleteWe are so sorry. Please call if you need anything. We will do what we can from across the time zone.
ReplyDeleteYou and your family are in my prayers. I also lost my first child after he was born. I found out he would not live after he was born at 20 weeks. It was the hardest part of my life. He lived e hour and sixteen minutes. I would do it all over again. October 25th he would be 12 years old. I know what u r feeling. If I can help I would love to talk to u and offer any help.
ReplyDeleteWe are so very sorry Candice and Rob! You are in our prayers!
ReplyDeleteI am so sorry, my prayers will be with you. I wish there was more I could do or say.
ReplyDeleteLove
Kimberly
I am SO sorry to hear of Baby Jackson's passing. I have a special place in my heart for these sweet CDH babies as I have cared for many over my four years as an RN. Recently a nurse who worked in my NICU for over 20 years passed away and I know she is in Heaven welcoming Jackson with open arms. You are all in my thoughts and prayers as you struggle through this difficult time in your life.
ReplyDeleteI hope ur faith in God helps u get thru this difficult time. It's the only I got thru. I now have an amazing 9 year old boy. He was born 3 years after Jonathan. Time does heal a little. The important thing is to be there for each other. My ex-husband was not there for me. I hope u remember God has a plan. U won't get over it but u will get thru.
ReplyDeleteWords can't express how deeply sorry we are for your loss. Our hearts are heavy and our tears are real for the both of you. You are in our thoughts and prayers.
ReplyDeleteLife is not fair....Heaven got a beautiful baby this afternoon...prayers in this unbearable time. Sorry just doesn't mean much...my heart is broken another cdh baby grew wings. God grieves with you. Know you are very much thought about as your lives will never be the same.
ReplyDelete~Terri and Ava
http://avaslifewithcdh.blogspot.com
I can't express the sorrow I feel right now at the loss of Baby Jackson. I never thought that his life would be so short. What a very special soul he must be for God to take him to his heavenly home so quickly. I am truely sorry for your loss. My prayers are with your family.
ReplyDelete~Sue
If I can be any help or u just want someone to talk to that has been there and has had the time to get back to a semi normal life, please contact me. carrietm@embarqmail.com Ur son is beautiful.
ReplyDeleteI am so sorry for your loss. I understand what you are going through, I lost my daughter Ava to CDH in April. Please know that I am thinking of you daily in your journey and pray for better days ahead for us all.
ReplyDelete~Lisa
Rob and Candice,
ReplyDeleteWe are so sorry to hear that Jackson grew his wings today. He was one brave little guy! Wishing you strength and peace during this difficult time.
Love and prayers,
Sheryl and Tom
Rob and Candice,
ReplyDeleteI am so sad to hear about Jackson. He will always be a Warrior! His short time has impacted so many and we will never forget him. My prayers are with you.
I am sorry that jackson has grown his wings. ((Hugs)) I lost my son Kasey in December to CDH as well.
ReplyDeleteNicolle
We are here for you if you need anything! Your family is in our thoughts and prayers! We love y'all dearly.
ReplyDeleteYou are in my thoughts and prayers.
ReplyDeletenot sure what to say....no words can help, but know that you are being prayed for. I came across your blog only last night and was just coming in to check again. I am so very very sorry for your loss.....
ReplyDeletePrayers during this difficult time.....((((hugs))))
My heart is breaking for you all. The pain you feel is all too familiar. I pray that you are able to find some peace in this devastation. Knowing that Jackson is in the loving arms of God.
ReplyDeleteI am so sorry for your loss! Baby Jackson and your family will always be in my thoughts and prayers! After reading and following all of the CDG Blogs really made me come to realize I would like to contribute something to these babies that are born with this horrible defect!
ReplyDeleteWe are so sorry to hear about your Baby Jackson. I am praying for you both -- that God would comfort and ease the ache in your hearts. We will continue to pray for you all in these days and monthes ahead.
ReplyDeleteI am so sorry for your loss. May God give you the strength and the courage you will need to get through this.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteRob,
ReplyDeleteI just happened to come across your blog today and I can't tell you how sorry I am for your loss. I hope that you and your wife will find some small amount of comfort in our thoughts and prayers.
We are so very sorry to hear about Baby Jackson.
ReplyDeleteOur thoughts and prayers are with you all.
my heart goes out to you all..your wee angel will keep you strong...i am so sorry for your loss...majella mummy to jack cdh survivor n.ireland xxxx
ReplyDeleteMy heart goes out to you both. I am so sorry to hear that sweet little Jackson is now playing with my Maxton. I know Max and he are looking down watching over us. It shouldn't be this way, but for some reason God saw that our babies would be great young souls in heaven. I posted a poem on our blog after Maxton passed that talked about what kind of place would heaven be if there were no children. I cannot imagine a place with no children! I am so sorry that your child, too, had to be one of the young souls there. If you guys need to talk, please don't hesitate to email me or call (270) 333-4731. I will be here day or night!
ReplyDeleteAshley
My thoughts & prayers are with you. This cdh road is a rough one. Jackson was greeted with open arms by many cdh angels when he arrived.
ReplyDeleteMy thoughts & prayers are with i am so sorry for your lost
ReplyDeleteI have been following your blog for a little while; I lost my son Thomas to CDH 2 weeks ago - I am so so sorry that you are having to suffer too at the hands of this horrible, random condition. At least you know that Jackson is now at peace and free of any pain. much love to you from across the Atlantic. x
ReplyDeleteI am so sorry for your loss. I had such hopes for Jackson. I've been following your blog for awhile now. I lost my daughter, Sylvia, to cdh in February. CDH just isn't fair! Why our babies? The only thing that brings me peace is that they are at peace. You are wonderful warrior parents to warrior Jackson. You are in my thoughts and prayers.
ReplyDeleteIn tears and heartache,
Beth Houselog, mom to Sylvia, CDH angel who grew her wings on 2/26/09.
Care page: babysylvia
www.houselogfamily.blogspot.com
I don't really know what to say! I do know how much I hate CDH. My little girl is a RCDH survivor, and has daily challenges. I pray for your family during this hard time, and I thankyou for allowing us all into your CDH world.
ReplyDeleteI am so very sorry to hear of the loss of Jackson. He shares the angelversary of my baby boy Collin who also lost the fight against CDH. My prayers are with this family.
ReplyDeletehttp://collin-hendricks.memory-of.com
Rob and Candice,
ReplyDeleteI am so sad to hear about your loss. My prayers are with you.
Rob and Candice, I am so very sorry for your loss. My prayers and thoughts are with your family during this time.
ReplyDeleteSo sorry for you loss. He sure was a warrior though. What a champ! My prayers and toughts are with you. Fly away Baby Jackson.
ReplyDeletevery sorry to hear of jacksons passing, my aubrey lost her battle from many of the same problems. it will be 3 years on friday and there isn't a day that goes by that i dont think of her and thank her for herfight and for makeing me a stronger wiser person, im a better mom because of our plight with cdh.give yourself the time you need others may set a limit on your grief, but mothers of angels know that it is just another level and place grif takes you, until your together again. i pray for the strength the courage and the peace to live each day for jackson
ReplyDeleteWe are very sorry to hear about your the loss of your son. I know for sure, he is with the Lord in heaven.
ReplyDeleteWe are sorry.
Bold Family
CDH Parents
Candice and Rob, I am so sorry for your loss. My family will pray that you find peace during this difficult time.
ReplyDeleteCandice & Rob,
ReplyDeleteI have just returned from a week away and am thoroughly devastated to hear this news!! We have all been praying so hard for your beautiful, strong, brave and wonderful son!
I'm so sorry for your loss and I pray you find peace and healing in the weeks to come.
If you need anything at all please call...anytime.
Your little Jackson was really an inspirational little boy and we will never forget him. I would like to send you something if you could please send me your address.
If you need to 'get away' we always have a door open here in the UK.
We love you deerly and continue to hold you in prayer.
Much Love
Beth, Mike and Baby James xxx
I am so sorry to hear about your little boy Jackson, sending Thoughts and prayers to you and your family
ReplyDeletedebbie
mum to Joel LCDH 24.04.06 - 25.04.06
www.joelarchie.piczo.com
ReplyDelete11:02pm
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